About us
Together, let's break the taboos and promote resilience.
Our association was born out of a deep-seated need: providing guidance, information and support all those affected by sickle cell disease as well as by autoimmune diseasesoften misunderstood.
We believe that illness should never isolate people. That's why we work every day to create an environment where people can live together in harmony. a caring and inspiring spacewhere everyone can feel listened to, understood and supported.
Our missions
Support patients and their families through concrete actions, from moral support to referrals to healthcare professionals.
Information the general public about sickle cell anaemia and autoimmune diseases to combat prejudice, break taboos and promote greater social inclusion.
Enhancing resilience by highlighting inspiring personal stories and courageous life stories.
A community united by hope and solidarity
We believe that united we stand. Together, patients, relatives, healthcare professionals and volunteers, we are building a community of solidarity.
Our objective is clear: breaking isolation, raise awarenessand offer everyone a space where they can express themselves freelyto feel understood, and to find strength in the face of hardship.
What they say about us
"We often lack the resources to support sickle cell patients, especially young people from modest backgrounds. Donations from the Le Bien a dit association, particularly in the form of educational materials, healthcare products and food aid, have had a real impact on the quality of life of our patients. It's precious, humane and committed help.
"When you're young, ill and far from your family, you often feel alone. The Le Bien a dit charity reached out to me with a parcel of essential goods, and above all, with words of encouragement. It's not just supplies: it's a chain of solidarity that warms the heart."
"The children we look after live with chronic pain. Seeing their faces light up when the association came with games, books and gifts is priceless. This kind of initiative should exist everywhere. Thank you to Le Bien a dit for this breath of fresh air in our daily medical lives."
"My daughter is hospitalised regularly because of her sickle-cell anaemia. As well as the pain, there's the stress and isolation. The help provided by the Le Bien a dit association has made a huge difference to us: meals offered, listening, help with transport... It's the little things that change everything. We're no longer alone in this fight.
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"Sickle cell anaemia is an invisible disease, but it makes me suffer every day. When the Le Bien a dit association gave me a well-being kit with food supplements, a heating blanket and suitable products, I was overwhelmed. It's rare to feel seen and supported. Thank you to them for thinking of us.