Beyond diagnosis, there is life. What are the day-to-day realities for people with sickle cell anaemia or autoimmune diseases? Here are some inspiring and authentic accounts.
Fighting pain every day
- Testimony from Fatou, who has sickle cell anaemia: "My attacks keep me in bed, but I've learnt to listen to my body".
- Sophie, lupus sufferer: "Fatigue is invisible, but very real".
The psychological and social impact
- Isolation, lack of understanding, medical wandering
- The need for psychological support
- Importance of family support and discussion groups
Adapting your life to illness
- Work or study arrangements
- Taking care of your diet and lifestyle
- Practising a suitable physical activity
Fighting to raise awareness
- Creation of associations
- Speaking out on social networks
- World days to advance research
? Share your story: it can help other patients feel less alone.
