{"id":3674,"date":"2025-04-15T04:30:58","date_gmt":"2025-04-15T02:30:58","guid":{"rendered":"https:\/\/lebienadit.com\/?p=3674"},"modified":"2025-04-15T04:30:58","modified_gmt":"2025-04-15T02:30:58","slug":"vivre-avec-une-maladie-chronique-temoignages-de-patients-atteints-de-drepanocytose-et-de-maladies-auto-immunes","status":"publish","type":"post","link":"https:\/\/lebienadit.com\/en\/vivre-avec-une-maladie-chronique-temoignages-de-patients-atteints-de-drepanocytose-et-de-maladies-auto-immunes\/","title":{"rendered":"Living with a chronic disease: testimonies from patients with sickle cell anaemia and autoimmune diseases"},"content":{"rendered":"<p>Beyond diagnosis, there is life. What are the day-to-day realities for people with sickle cell anaemia or autoimmune diseases? Here are some inspiring and authentic accounts.<\/p>\n\n\n\n<p><strong>Fighting pain every day<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Testimony from Fatou, who has sickle cell anaemia: \"My attacks keep me in bed, but I've learnt to listen to my body\".<\/li>\n\n\n\n<li>Sophie, lupus sufferer: \"Fatigue is invisible, but very real\".<\/li>\n<\/ul>\n\n\n\n<p><strong>The psychological and social impact<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Isolation, lack of understanding, medical wandering<\/li>\n\n\n\n<li>The need for psychological support<\/li>\n\n\n\n<li>Importance of family support and discussion groups<\/li>\n<\/ul>\n\n\n\n<p><strong>Adapting your life to illness<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Work or study arrangements<\/li>\n\n\n\n<li>Taking care of your diet and lifestyle<\/li>\n\n\n\n<li>Practising a suitable physical activity<\/li>\n<\/ul>\n\n\n\n<p><strong>Fighting to raise awareness<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Creation of associations<\/li>\n\n\n\n<li>Speaking out on social networks<\/li>\n\n\n\n<li>World days to advance research<\/li>\n<\/ul>\n\n\n\n<p>? <strong>Share your story: it can help other patients feel less alone.<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>Au-del\u00e0 du diagnostic, il y a la vie. Quelles sont les r\u00e9alit\u00e9s du quotidien pour les personnes atteintes de dr\u00e9panocytose ou de maladies auto-immunes ? Voici des t\u00e9moignages inspirants et authentiques. Lutter chaque jour contre la douleur L\u2019impact psychologique et social Adapter sa vie \u00e0 la maladie Se battre pour sensibiliser&hellip;<\/p>","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-3674","post","type-post","status-publish","format-standard","hentry","category-non-classe"],"_links":{"self":[{"href":"https:\/\/lebienadit.com\/en\/wp-json\/wp\/v2\/posts\/3674","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lebienadit.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/lebienadit.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/lebienadit.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/lebienadit.com\/en\/wp-json\/wp\/v2\/comments?post=3674"}],"version-history":[{"count":1,"href":"https:\/\/lebienadit.com\/en\/wp-json\/wp\/v2\/posts\/3674\/revisions"}],"predecessor-version":[{"id":3675,"href":"https:\/\/lebienadit.com\/en\/wp-json\/wp\/v2\/posts\/3674\/revisions\/3675"}],"wp:attachment":[{"href":"https:\/\/lebienadit.com\/en\/wp-json\/wp\/v2\/media?parent=3674"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/lebienadit.com\/en\/wp-json\/wp\/v2\/categories?post=3674"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/lebienadit.com\/en\/wp-json\/wp\/v2\/tags?post=3674"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}